Ann Arbor, MI Proximalmyotonicmyopathy. PROMM (Proximalmyotonicmyopathy)...

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PROMM (Proximalmyotonicmyopathy)

Online. 77 members. Founded 2001.
An e mail discussion group for people with proximal myotonic myopathy (aka myotonic dystrophy type 2), a rare form of muscular dystrophy. Open to families, friends and professionals associated with them. Discussion centered around symptoms, adaptation, and variant manifestation.
CALL: 215-428-2399
E-MAIL: kili1247@yahoo.com
WEBSITE: http://groups.yahoo.com/group/PROMM
VERIFIED: 5/19/2005

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