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United Mitochondrial Disease Foundation (UMDF)
National network. 13 chapters. 17 affiliated groups. Founded 1995.
Chapter and support groups, networking for families affected by
mitochrondrial disease, a genetic degenerative disease.
Provides support to affected individuals and families, and promotes
research and education for the diagnosis, treatment and cure of
mitochondrial disorders. Quarterly newsletter, information and
referrals, library of medical publications, patient registry, phone
help and annual symposium. Awards research grants.
Write: UMDF
8085 Saltsburg Rd Pittsburgh, PA 15239
Voice: 412-793-8077 Fax: 412-793-6477
Website: http://www.umdf.org
E-mail: info@umdf.org
Verified: 10/18/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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