This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Hydrocephalus Association
(BILINGUAL) National network. Founded 1984. Provides support,
education and advocacy for people with hydrocephalus and their
families. Provides a wealth of resource materials on hydrocephalus
for all age groups, quarterly newsletter, directory of
neurosurgeons, bi-annual national conference and scholarships for
young adults. Support and information available in English and
Spanish.
Write: Hydrocephalus Association
870 Market St., Suite 705 San Francisco, CA 94102
Voice: 1-888-598-3789 Fax: 415-732-7044
Website: http://www.hydroassoc.org
E-mail: info@hydroassoc.org
Verified: 10/8/2008
National Hydrocephalus Foundation (NHF)
National and international network. Founded 1979. Mission is to
establish and facilitate a communication network amongst families
or adult-to-adult, provide informational and educational assistance
to individuals and families affected by hydrocephalus and increase
public awareness. Promote and support research on the cause,
prevention and treatment of hydrocephalus. Guidelines to help start
support groups available. Help Sheets, brochures, physician
referrals, 24-hour contact and quarterly newsletter.
Write: National Hydrocephalus Foundation
12413 Centralia Rd. Lakewood, CA 90715-1623
Voice: 1-888-857-3434
Website: http://nhfonline.org
E-mail: hydrobrat@Earthlink.net or debbifields@nhfonline.org
Verified: 10/9/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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