This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
DEBRA of America
(Dystrophic Epidermolysis Bullosa Research Association) National
network. Founded 1980. Support and information for families affected
by epidermolysis bullosa. Promotes research, provides education for
patients, families and professionals, emergency financial support,
emergency wound care supplies, New Family Advocate program,
newsletter, biennial national conference, information and referrals.
Write: DEBRA of America
16 E. 41st., 3rd Floor New York, NY 10017
Voice: 212-868-1573 or 1-866-332-7276 Fax: 212-868-9296
Website: http://www.debra.org
E-mail: staff@debra.org
Verified: 10/9/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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